Today is Thursday, October 29th. Steve has asked me to please update the blog. He has never said that to me before. The reason he is excited for me to update is because we cannot believe the amazing improvement we are seeing in Emily. Her feet are almost completely straight. I am knocking on wood as I write this, because I am superstitious! But, I will say it all anyway! Her feet are straight, she is walking straight, she doesn't have fatigue at the end of the day like before, she hasn't had spasms and her posture is much straighter. We are just so amazed and thrilled. It has been three months and one day since she had the DBS and the progress has been unbelievable. I don't think any of us thought we would see these results so soon.
I am hoping that Emily's courage to go through this procedure will encourage other people suffering from Dystonia to seek treatment. There are options out there and we need to get the word out. so much is still unknown about this disorder and researchers are doing studies and trying to find a cure. Hopefully a cure will be found sooner than later, but in the meantime, there is help available. This is such a new procedure for Dystonia and we encourage anyone with Dystonia to contact us and ask us any questions that you have. You can comment on this blog, or send an email to Kidswithdystonia@gmail.com.
Everyone's continued prayers and positive thoughts are appreciated. This is a progressive disorder and DBS is not a cure. So we must continue to support research to cure this and other movement disorders such as Parkinson Disease.
Emily is doing great. She loves school, especially math and science. She is nterested in pursuing a career in medicine and talks about being a pediatrician. I think she would be great!!!
Lots of love,
Marci
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment