It has been over a month since Emily's surgery and she is doing very well. Steve and Emily flew up and back to San Francisco today to see Drs. Starr and Ostrem. They seemed to notice an improvement in her symptoms as have we, although very subtle. They checked her stiches and Dr. Starr wants us to take a photo of her head stiches in a week or so and send them to him by email. He thinks they are fine, but wants to keep an eye on their healing just in case. This way, we wont have to fly back up in two weeks. Much easier. The incisions in her chest where the batteries are look great too. They turned up the stimulation from 1.5 to 2.5. They initally turned it up only to 2.0 Steve said, but she seemed to tolerate it, so they turned it up more. I hoping we really see some improvement now. Emily feels like her foot is flatter and I notice it too. It still turns in some, but she just looks a lot more balanced. Hard to tell if she has had any improvement on her right arm and hand as she hasn't been writing at all. Dystonia symptoms vary from day to day depending on a lot of factors such as fatigue, stress etc. Hopefully what we are seeing is an improvement though.

School has not started for her and she is quite bored. She is getting excited to start her new school and Tuesday couldn't get here fast enough. She has met two of her three teachers and also a few of the students.

I will let you know when something else occurs!

Thank you to everyone for your calls, emails, etc.!

Love, Marci